The following are all resources I use. I've done a lot of research, and tried a lot of products, and all-things-chronic-illness to help me feel better, physically, emotionally, and spiritually. These are my favorites.
Associations for Chronic Illness:
- American Autoimmune and Related Diseases Association (AARDA) - Many chronic illnesses are autoimmune in nature, and this organization seeks to find the common root causes, regardless of whether an illness affects your endocrine system, your musculo-skeletal system, digestive system, etc.
- Invisible Disabilities Association - Information and encouragement for anyone with a chronic debilitating illness that isn't obvious by looking at you.
- National Databank for Rheumatic Diseases - The NDB is an independent, non-profit research center. I have been participating in their ongoing study of arthritis patients for almost a decade. You fill out a questionnaire every six months on your symptoms and treatment, to give researchers a better idea of how arthritis affects people over time. The results of this comprehensive study may one day help others like us. I encourage anyone with inflammatory arthritis to consider joining this study, or at least sign up with their Arthritis Internet Registry.
- Spondylitis Association of America (SAA) - SAA is the go-to organization in the U.S. for information and support on ankylosing spondylitis and all other spondyloarthropathies (typically back-pain related arthritis). If you have had chronic back pain for three months or more, definitely check them out. Spondylitis is not as rare as people used to think.
Chronic Illness Blogs I Enjoy:
- The Mighty - a wonderful blog with stories from thousands of patients sharing their experience with a wide variety of chronic illnesses
- But You Don't Look Sick - an award-winning blog by Christine Miserandino, author of the Spoon Theory, a story that clearly describes to healthy friend what it's like to live with a fatiguing chronic illness on a daily basis..
- Rest Ministries Chronic Illness and Pain Support - a place offering comfort and inspiration for Christians with chronic illness